The application of distributed autonomous organization governance mechanisms to civic medical data management

James Cunningham; Nigel Davies; Sarah Devaney; Søren Holm; Mike Harding; Victoria Neumann; John Ainsworth

doi:10.1049/blc2.12062

journal article Open Access Jan 26, 2024

The application of distributed autonomous organization governance mechanisms to civic medical data management

James Cunningham

Nigel Davies Sarah Devaney Søren Holm Mike Harding Victoria Neumann John Ainsworth

IET Blockchain Vol. 4 No. S1 pp. 507-525 · Institution of Engineering and Technology (IET)

View at Publisher Save 10.1049/blc2.12062

Abstract

Abstract
Decentralized autonomous organizations (DAOs) have emerged as a novel governance mechanism that operates through distributed ledgers and smart contracts, enabling members to direct an organization's actions. The widespread adoption of DAOs has occurred in response to their utility in managing emergent semi‐structured projects and has led to the development of various innovative governance mechanisms. The mechanisms employed by DAOs has the potential to be generalized beyond their core financial domain to a wide range of use cases. In the medical field the use of blockchain and DAOs can provide secure and transparent access to medical data, while ensuring patient privacy. Civic access to medical data is a growing area of interest, where individuals have control over their own medical data and can share it with healthcare providers, researchers, and other stakeholders. DAOs can facilitate this civic access, enabling individuals to share their data securely and selectively with authorized parties for research and other purposes. This paper explores the use of DAOs to medical data sharing, with a focus on ownership, governance, and transaction models. An application framework and API that enables the deployment of DAO‐like organizations is derived and this approach is applied to the patient‐centric management of medical data.

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Details

Published: Jan 26, 2024
Vol/Issue: 4(S1)
Pages: 507-525
License: View

Authors

J

James Cunningham

Division of Informatics Imaging and Data Sciences University of Manchester Manchester UK

N

Nigel Davies

Department of Computing and Communications Lancaster University Lancaster UK

S

Sarah Devaney

CSEP Department of Law School of Social Sciences The University of Manchester Manchester UK

S

Søren Holm

CSEP Department of Law School of Social Sciences The University of Manchester Manchester UK

M

Mike Harding

Department of Computing and Communications Lancaster University Lancaster UK

V

Victoria Neumann

Department of Computing and Communications Lancaster University Lancaster UK

J

John Ainsworth

Division of Informatics Imaging and Data Sciences University of Manchester Manchester UK

Funding

Engineering and Physical Sciences Research Council Award: EP/S02770X/1

Cite This Article

James Cunningham, Nigel Davies, Sarah Devaney, et al. (2024). The application of distributed autonomous organization governance mechanisms to civic medical data management. IET Blockchain, 4(S1), 507-525. https://doi.org/10.1049/blc2.12062

The application of distributed autonomous organization governance mechanisms to civic medical data management

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