Supported Decision Making With People at the Margins of Autonomy

Andrew Peterson; Jason Karlawish; Emily Largent

doi:10.1080/15265161.2020.1863507

journal article Open Access Dec 29, 2020

Supported Decision Making With People at the Margins of Autonomy

Andrew Peterson

Jason Karlawish

Emily Largent

The American Journal of Bioethics Vol. 21 No. 11 pp. 4-18 · Informa UK Limited

View at Publisher Save 10.1080/15265161.2020.1863507

Topics

No keywords indexed for this article. Browse by subject →

References

76

[1]

10.1136/medethics-2015-102807

[2]

American Bar Association 2017. Supported decision making resolution 113 to the ABA house of delegates. Prepared by the Commission on Disability Rights, Section of Civil Rights and Social Justice Section of Real Property, Trust and Estate Law, Commission on Law and Aging, 113. Last cccessed February 8, 2020. https://www.americanbar.org/content/dam/aba/administrative/law_aging/2017_SDM_%20Resolution_Final.pdf

[3]

null

Philosophy Study 10.17265/2159-5313/2016.09.003

[4]

American Bar Association. 2018. State adult guardianship legislative summary: Directions of reform. Last accessed February 8, 2020. https://www.americanbar.org/content/dam/aba/administrative/law_aging/2018-adult-guardianship-legislative-summary.pdf

[5]

10.1056/nejmcp074045

[6]

10.18061/dsq.v37i1.5070

[7]

Bach, M., and L. Kerzner. 2010. A new paradigm for protecting autonomy and the right to legal capacity. Prepared by The Law Commission of Ontario. Last accessed February 8, 2020. https://www.lco-cdo.org/wp-content/uploads/2010/11/disabilities-commissioned-paper-bach-kerzner.pdf

[8]

Beauchamp T. L. (2019)

[9]

10.1002/ajs4.19

[10]

British Columbia Representation Agreement Act. 1996. RSBC Chapter 405. Last accessed February 8, 2020. http://www.bclaws.ca/civix/document/id/complete/statreg/96405_01

[11]

10.1177/0733464817723088

[12]

10.1080/23297018.2014.902726

[13]

10.1017/cbo9781139171946

[14]

10.1023/b:phil.0000014532.56866.5c

[15]

The Extended Mind

A. Clark, D. Chalmers

Analysis 10.1093/analys/58.1.7

[16]

10.1016/j.apmr.2007.07.033

[17]

10.1016/j.ijlp.2015.01.008

[18]

10.1111/jlme.12090

[19]

Dinerstein R. D. Human Rights Brief (2012)

[20]

Faden R. R. (1986)

[21]

10.1093/acprof:oso/9780190280307.003.0014

[22]

10.5840/soctheorpract200733229

[23]

Francis L. P. (2011)

[24]

10.1016/j.jamda.2005.03.021

[25]

10.1352/2326-6988-3.1.2

[26]

Glen K. B. Columbia Human Rights Law Review (2012)

[27]

10.1353/ken.2002.0025

[28]

10.1080/13218719.2012.711683

[29]

Grisso T. (1998) 10.1093/oso/9780195103724.001.0001

[30]

10.3390/soc8020025

[31]

10.1352/2326-6988-3.2.65

[32]

Ireland Assisted Decision-Making (Capacity) Act. 2015. No. 64. Last accessed February 8, 2020. http://www.irishstatutebook.ie/eli/2015/act/64/enacted/en/print#sec1.

[33]

10.1007/s10882-018-9607-z

[34]

10.1080/02687039808249575

[35]

10.1002/bsl.702

[36]

10.1111/j.1467-9337.2010.00473.x

[37]

Kohn N. A. Penn State Law Review (2012)

[38]

10.1353/hcr.2005.0025

[39]

10.1080/15265160701518466

[40]

10.1080/03605310490883028

[41]

10.1111/j.1467-9833.2008.00440.x

[42]

Mackenzie C. (2000) 10.1093/oso/9780195123333.001.0001

[43]

10.1001/archneur.1995.00540340029010

[44]

Menon S. Journal of Medical Ethics (2020)

[45]

National Commission. 1978. The Belmont report: Ethical principles and guidelines for the protection of human subjects of research. InPrepared by The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. Last accessed February 8, 2020. https://www.hhs.gov/ohrp/regulations-and-policy/belmont-report/read-the-belmont-report/index.html

[46]

National Conference of Commissioners on Uniform State Laws. 2017. Uniform guardian, conservatorship and other protective Arrangements Act. Last accessed February 8, 2020. https://www.uniformlaws.org/HigherLogic/System/DownloadDocumentFile.ashx?DocumentFileKey=de9bae9e-0b4e-0781-12b5-f5305569bf19&forceDialog=0

[47]

National Council on Disability. 2019. Turning rights into reality: How guardianship and alternatives impact the autonomy of people with intellectual and developmental disabilities. Last accessed May 12, 2020. https://ncd.gov/sites/default/files/NCD_Turning-Rights-into-Reality_508_0.pdf

[48]

10.1212/01.wnl.0000277639.90611.d9

[49]

10.1186/s12910-017-0241-6

[50]

10.1212/wnl.0b013e3181f11d85

Showing 50 of 76 references

Cited By

91

What Matters Most to People Living With Dementia and Their Care Partners During Emergency Department Visits

Clark Benson, Kayla Dillon · 2025

Journal of the American Geriatrics...

Metrics

91

Citations

76

References

Details

Published: Dec 29, 2020
Vol/Issue: 21(11)
Pages: 4-18
License: View

Authors

A

Andrew Peterson

George Mason University

J

Jason Karlawish

University of Pennsylvania

E

Emily Largent

University of Pennsylvania

Funding

Greenwall Foundation Faculty Scholars Program Award: P30-

Emmanuel and Robert Hart Chair in Bioethics

Healthy Brain Research Network

Cite This Article

Andrew Peterson, Jason Karlawish, Emily Largent (2020). Supported Decision Making With People at the Margins of Autonomy. The American Journal of Bioethics, 21(11), 4-18. https://doi.org/10.1080/15265161.2020.1863507

Supported Decision Making With People at the Margins of Autonomy

You May Also Like