Global Survey of the Roles, Satisfaction, and Barriers of Home Health Care Nurses on the Provision of Palliative Care

Jeannine M. Brant; Regina M. Fink; Cara Thompson; Ya Huei Li; Maryam Rassouli; Tomoko Majima; Tomoko Osuka; Nahla Gafer; Ayfer Ayden; Khaled Khader; Eulalia Lascar; Lili Tang; Sophia Nestoros; Maihan Abdullah; Natasha Michael; Julie Cerruti; Eric Ngaho; Yolanda Kadig; Mohamed Hablas; Rana Istambouli; Mary A. Muckaden; Mushtaq Najm Ali; Bella Aligolshvili; Rana Obeidat; Gulnara Kunirova; Ma'an Al-Omari; Mohammad Qadire; Suha Omran; Marie C. Mouhawej; Mohcine Zouak; Ibtisam Ghrayeb; Nemeh Manasrah; Alexey Youssef; Paz F. Ortega; Gonca Tuncel Oguz; Loyda Amor N. Cajucom; Kassie Leaphart; Alexa Day; Michael Silbermann

doi:10.1089/jpm.2018.0566

journal article Aug 01, 2019

Global Survey of the Roles, Satisfaction, and Barriers of Home Health Care Nurses on the Provision of Palliative Care

Jeannine M. Brant Regina M. Fink Cara Thompson Ya Huei Li Maryam Rassouli

Tomoko Majima Tomoko Osuka Nahla Gafer Ayfer Ayden Khaled Khader Eulalia Lascar Lili Tang

Sophia Nestoros Maihan Abdullah Natasha Michael Julie Cerruti Eric Ngaho Yolanda Kadig Mohamed Hablas Rana Istambouli Mary A. Muckaden Mushtaq Najm Ali Bella Aligolshvili Rana Obeidat Gulnara Kunirova Ma'an Al-Omari Mohammad Qadire Suha Omran Marie C. Mouhawej Mohcine Zouak Ibtisam Ghrayeb Nemeh Manasrah Alexey Youssef Paz F. Ortega Gonca Tuncel Oguz Loyda Amor N. Cajucom Kassie Leaphart Alexa Day Michael Silbermann

Journal of Palliative Medicine Vol. 22 No. 8 pp. 945-960 · SAGE Publications

View at Publisher Save 10.1089/jpm.2018.0566

Abstract

Abstract

Background:
The World Health Assembly urges members to build palliative care (PC) capacity as an ethical imperative. Nurses provide PC services in a variety of settings, including the home and may be the only health care professional able to access some disparate populations. Identifying current nursing services, resources, and satisfaction and barriers to nursing practice are essential to build global PC capacity.

Objective:
To globally examine home health care nurses' practice, satisfaction, and barriers, regarding existing palliative home care provision.

Design:
Needs assessment survey.

Setting/Subjects:
Five hundred thirty-two home health care nurses in 29 countries.

Measurements:
A needs assessment, developed through literature review and cognitive interviewing.

Results:
Nurses from developing countries performed more duties compared with those from high-income countries, suggesting a lack of resources in developing countries. Significant barriers to providing home care exist: personnel shortages, lack of funding and policies, poor access to end-of-life or hospice services, and decreased community awareness of services provided. Respondents identified lack of time, funding, and coverages as primary educational barriers. In-person local meetings and online courses were suggested as strategies to promote learning.

Conclusions:
It is imperative that home health care nurses have adequate resources to build PC capacity globally, which is so desperately needed. Nurses must be up to date on current evidence and practice within an evidence-based PC framework. Health care policy to increase necessary resources and the development of a multifaceted intervention to facilitate education about PC is indicated to build global capacity.

Topics

No keywords indexed for this article. Browse by subject →

References

40

[1]

Silbermann M, , Baider L, , Saleem A, et al.: The overwhelming contribution of women to the development and establishment of palliative care as a recognized medical specialty. Br J Cancer Res, 2018; 1:162–166.

[2]

Senel G Silbermann M: Cultural challenges in implementing programs in emerging countries. Palliat Med Hosp Care 2017. DOI: 10.17140/PMH.COJ-SE-1-101.

[3]

10.4172/2165-7386.1000e140

[4]

Silbermann ME: Palliative Care: Perspectives, Practices and Impact on Quality of Life. A Global view. New York: Nova Science Publishers, 2017.

[5]

10.1097/phh.0000000000000252

[6]

Sabar R, , Katz GJ, , Silbermann MJ: Family carers and the home hospice patient in Israel: A pilot study of the need for a multi-cultural perspective. J Fam Med, 2016; 3:1082.

[7]

10.1017/s147895151800055x

[8]

World Health Organization: Strengthening of palliative care as a component of comprehensive care throughout the life course (67th World Health Assembly). Geneva Switzerland: WHO; 2014. http://apps.who.int/medicinedocs/documents/s21454en/s21454en.pdf (Last accessed May 25 2018).

[9]

World Health Organization: Assessing national capacity for the prevention and control of noncommunicable diseases: report of the 2015 global survey Geneva Switzerland: WHO; 2016. http://apps.who.int/iris/bitstream/handle/10665/246223/9789241565363-eng.pdf;jsessionid=D1D3B3189E532CC1568841C71ADB818B?sequence=1&TSPD_101_R0=13566a6a80ca155434ed42b63bf07773j1b000000000000000271617a61ffff00000000000000000000000000005b7de7fc0064dd669a (Last accessed May 20 2018).

[10]

World Health Organization: Palliative care fast fastsheet. Geneva Switzerland: WHO. 2018. www.who.int/mediacentre/factsheets/fs402/en (Last accessed June 1 2018).

[11]

10.1080/10376178.2016.1198234

[12]

10.1111/hsc.12318

[13]

Ball J, , Philippou J, , Pike G, , Sethi GK: Survey of District and Community Nurses in 2013: Report to the Royal College of Nursing. London: Royal College of Nursing, 2014.

[14]

10.1093/heapro/dav018

[15]

10.1111/phn.12191

[16]

Department of Health and Human Services Tasmania: BAPC Community nursing palliative care snapshot survey Tasmania: Department of Health and Human Services. 2016. https://www.dhhs.tas.gov.au/palliativecare (Last accessed May 18 2018).

[17]

10.12968/ijpn.2010.16.4.47786

[18]

10.1016/j.ijnurstu.2010.04.006

[19]

10.1146/annurev-publhealth-032315-021448

[20]

10.1016/j.jpainsymman.2012.05.011

[21]

World Health Organization: World Bank Income Groups Geneva Switzerland: WHO. 2018. www.who.int/healthinfo/global_burden_disease/definition_regions/en (Last accessed July 10 2018).

[22]

10.1111/j.1365-2834.2012.01393.x

[23]

10.1136/bmjspcare-2012-000233

[24]

10.12968/ijpn.2015.21.3.142

[25]

10.1177/1043659614523474

[26]

10.1016/j.jpainsymman.2008.05.004

[27]

10.1089/109662103768253650

[28]

IBM SPSS Statistics 22.0. Chicago IL: SPSS Inc. 2014.

[29]

SAS 9.4. Cary NC: SAS Institute Inc. 2014.

[30]

10.1016/s1470-2045(18)30415-7

[31]

Ferrell BR Twaddle ML Melnick A Meier DE : National Consensus Project Clinical Practice Guidelines for Quality Palliative Care Guidelines 4th Edition. J Palliat Med 2018. [Epub ahead of print]; DOI: 10.1089/jpm.2018.0431. 10.1089/jpm.2018.0431

[32]

Coursera: Palliative Care: It's Not Just Hospice Anymore Specialization Denver CO : University of Colorado. 2019. https://www.coursera.org/specializations/palliative-care (Last accessed January 16 2019).

[33]

10.1111/jonm.12153

[34]

10.18203/2349-3933.ijam20150575

[35]

Fitch MI, , Fliedner MC, , O'Connor M: Nursing perspectives on palliative care 2015. Ann Palliat Med, 2015; 4:150–155.

[36]

Nkowane AM, , Khayesi J, , Suchaxaya P, et al.: Enhancing the role of community health nursing for Universal Health Coverage: A survey of the practice of community health nursing in 13 countries. Ann Nurs Pract, 2016; 3:1042.

[37]

10.3122/jabfm.2016.06.160054

[38]

Australian Primary Health Care Nurses Association (HPNA): Blog for Nurses Working in Primary Health Care Melbourne Australia: HPNA. 2016. www.apnanurses.asn.au (Last accessed October 13 2018).

[39]

Medicare Payment Advisory Commission:. Report to the Congress: Medicare Payment Policy. Washington, DC: Medicare, 2017.

[40]

10.1089/jpm.2017.0696

Cited By

41

A systematic review of the determinants of job satisfaction in healthcare workers in health facilities in Gulf Cooperation Council countries

Mohannad Alkhateeb, Khaled Althabaiti · 2025

Global Health Action

Facilitating planned home death: A qualitative study on home care nurses' experiences of enablers and barriers

Anne Kristine Sørstrøm, Mette Spliid Ludvigsen · 2024

Journal of Advanced Nursing

Metrics

41

Citations

40

References

Details

Published: Aug 01, 2019
Vol/Issue: 22(8)
Pages: 945-960
License: View

Authors

J

Jeannine M. Brant

Collaborative Science and Innovation, Billings Clinic, Montana State University College of Nursing, Billings, Montana.

R

Regina M. Fink

College of Nursing and School of Medicine, University of Colorado, Aurora, Colorado.

C

Cara Thompson

Palliative Care, University of Colorado Health, Aurora, Colorado.

Y

Ya Huei Li

Collaborative Science and Innovation, Billings Clinic, Billings, Montana.

M

Maryam Rassouli

Shahid Beheshti, University of Medical Sciences Cancer Research Center, Teheran, Iran.

T

Tomoko Majima

Graduate School of Nursing, Chiba University, Chiba, Japan.

T

Tomoko Osuka

Graduate School of Nursing, Chiba University, Chiba, Japan.

N

Nahla Gafer

Radiation and Isotope Center, Khartoum, Sudan.

A

Ayfer Ayden

Koç University School of Nursing, Istanbul, Turkey.

K

Khaled Khader

Taif University Faculty of Nursing, Taif, Saudi Arabia.

E

Eulalia Lascar

Hospital de Niños “Dr. Ricardo Gutierrez,” Buenos Aires, Argentina.

L

Lili Tang

Department of Psychology, Peking University Cancer Hospital, Beijing, China.

S

Sophia Nestoros

Cypriot Anticancer Society, Nicosia, Cyprus.

M

Maihan Abdullah

Health Promotion Department, Ministry of Public Health, Kabul, Afghanistan.

N

Natasha Michael

Sydney School of Medicine, University of Notre Dame, Sydney, Australia.

J

Julie Cerruti

Coordenadora Pesquisas Onco Pediátricas, Porto Alegre, Brazil.

E

Eric Ngaho

Baptist Hospital Mutengene, Tiko, Cameroon.

Y

Yolanda Kadig

The Cyprus Association of Cancer Patients and Friends, Limassol, Cyprus.

M

Mohamed Hablas

Al-Gharbiya Anticancer Society, Tanta, Egypt.

R

Rana Istambouli

Department of Palliative Care, Ain Wazein Medical Village University Hospital, Ain Wazein, Lebanon.; Palliative Medicine, Paris, France.

M

Mary A. Muckaden

Tata Memorial Center, Mumbai, India.

M

Mushtaq Najm Ali

Children's Welfare Teaching Hospital, Medical City, Baghdad, Iraq.

B

Bella Aligolshvili

Home Support Services, Clalit Health Organization, Jerusalem, Israel.

R

Rana Obeidat

Faculty of Nursing, Zarqa University, Zarqa, Jordan.

G

Gulnara Kunirova

Kazakhstan Palliative Care Association, Almaty, Kazakhstan.

M

Ma'an Al-Omari

Department of Oncology, King Abdullah University Hospital, Irbid, Jordan.

M

Mohammad Qadire

Faculty of Nursing, Al-Bayt University, Mafraq, Jordan.

S

Suha Omran

Faculty of Nursing, Jordan University of Science and Technology, Irbid, Jordan.

M

Marie C. Mouhawej

Hôtel Dieu de France, Ashrafieh, Lebanon.

M

Mohcine Zouak

Institute of Cancer Research, Rabat, Morocco.

I

Ibtisam Ghrayeb

Makassed Charitable Hospital, East Jerusalem, Palestine.

N

Nemeh Manasrah

Faculty of Nursing, Hebron University, West Bank, Palestine.

A

Alexey Youssef

Faculty of Medicine, Tishrin University, Latakia, Syria.

P

Paz F. Ortega

Catalan Institute of Oncology, Barcelona, Spain.

G

Gonca Tuncel Oguz

Dr. Abdurrahman Yurtaslan Ankara Oncology Education & Research Hospital, Ankara, Turkey.

L

Loyda Amor N. Cajucom

Open University of the Philippines, Los Banos, Laguna, Philippines.

K

Kassie Leaphart

St. Vincent Healthcare, Montana State University College of Nursing, Billings, Montana.

A

Alexa Day

Billings Clinic, Montana State University College of Nursing, Billings, Montana.

M

Michael Silbermann

Middle East Cancer Consortium, Haifa, Israel.

Cite This Article

Jeannine M. Brant, Regina M. Fink, Cara Thompson, et al. (2019). Global Survey of the Roles, Satisfaction, and Barriers of Home Health Care Nurses on the Provision of Palliative Care. Journal of Palliative Medicine, 22(8), 945-960. https://doi.org/10.1089/jpm.2018.0566

Global Survey of the Roles, Satisfaction, and Barriers of Home Health Care Nurses on the Provision of Palliative Care

You May Also Like