Burden of treatment for chronic illness: a concept analysis and review of the literature

Adem Sav; Michelle A. King; Jennifer A. Whitty; Elizabeth Kendall; Sara S. McMillan; Fiona Kelly; Beth Hunter; Amanda J. Wheeler

doi:10.1111/hex.12046

journal article Jan 31, 2013

Burden of treatment for chronic illness: a concept analysis and review of the literature

Adem Sav Michelle A. King Jennifer A. Whitty Elizabeth Kendall Sara S. McMillan

Fiona Kelly Beth Hunter Amanda J. Wheeler

Health Expectations Vol. 18 No. 3 pp. 312-324 · Wiley

View at Publisher Save 10.1111/hex.12046

Abstract

AbstractContextTreatment burden, the burden associated with the treatment and management of chronic illness, has not yet been well articulated.ObjectiveUsing Rodgers' (1989, Journal of Advanced Nursing, 14, 330–335) method of concept analysis, this review describes the ways in which treatment burden has been conceptualized to define the concept and to develop a framework for understanding its attributes, antecedents and consequences.MethodsLeading databases were searched electronically between the years 2002 and 2011. To ensure the review focused on actual observations of the concept of interest, articles that did not measure treatment burden (either qualitatively or quantitatively) were excluded. An inductive approach was used to identify themes related to the concept of treatment burden.Main resultsThirty articles, identified from 1557 abstracts, were included in the review. The attributes of treatment burden include burden as a dynamic process, as a multidimensional concept, and comprising of both subjective and objective elements. Prominent predisposing factors (antecedents) include the person's age and gender, their family circumstances, possible comorbidity, high use of medications, characteristics of treatment and their relationship with their health‐care provider. The most dominant consequences are poor health and well‐being, non‐adherence to treatment, ineffective resource use and burden on significant others. Furthermore, many of these consequences can also become antecedents, reflecting the cyclic and dynamic nature of treatment burden.ConclusionThe findings underscore the need for researchers and health‐care professionals to engage in collaborative discussions and make cooperative efforts to help alleviate treatment burden and tailor treatment regimens to the realities of people's daily lives.

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References

Details

Published: Jan 31, 2013
Vol/Issue: 18(3)
Pages: 312-324
License: View

Authors

A

Adem Sav

Griffith Health Institute Griffith University Meadowbrook Qld Australia

M

Michelle A. King

School of Pharmacy Griffith University Gold Coast Qld Australia

J

Jennifer A. Whitty

Centre for Applied Health Economics Griffith Health Institute Griffith University Meadowbrook Qld Australia

E

Elizabeth Kendall

Director of Research, Health and Wellbeing Stream Griffith Health Institute Griffith University Meadowbrook Qld Australia

S

Sara S. McMillan

Griffith Health Institute Griffith University Meadowbrook Qld Australia

F

Fiona Kelly

School of Pharmacy University of Auckland Auckland New Zealand; Griffith University Meadowbrook Qld Australia

B

Beth Hunter

Griffith Health Institute Griffith University Meadowbrook Qld Australia

A

Amanda J. Wheeler

Griffith Health Institute Griffith University Meadowbrook Qld Australia; Faculty of Medical and Health Sciences University of Auckland Auckland New Zealand

Cite This Article

Adem Sav, Michelle A. King, Jennifer A. Whitty, et al. (2013). Burden of treatment for chronic illness: a concept analysis and review of the literature. Health Expectations, 18(3), 312-324. https://doi.org/10.1111/hex.12046

Burden of treatment for chronic illness: a concept analysis and review of the literature

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