In our own words: Using participatory dialogue to reflect on the mental health experiences of autistic students in university

Ellie Horton; Laura Brownhill; Alice Bycroft; Anita Z. Goldschmied; Max J. Knops; Anthony Lloyd; Daniel Tones; Beth Wiltshire; Carla T Toro; Jagjeet Jutley-Neilson

doi:10.1177/27546330241310372

journal article Open Access Jan 01, 2025

In our own words: Using participatory dialogue to reflect on the mental health experiences of autistic students in university

Laura Brownhill Alice Bycroft Anita Z. Goldschmied Max J. Knops Anthony Lloyd Daniel Tones Beth Wiltshire Carla T Toro Jagjeet Jutley-Neilson

Neurodiversity Vol. 3 · SAGE Publications

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Abstract

The mental health of autistic university students is a key issue to address, evidenced by increased prevalence of mental health issues within the autistic community and growing numbers of autistic university students. Autistic students experiencing mental health issues have the lowest retention and progression rates of any disability group. This research took a novel approach, with seven co-authors and members of the participatory group (all current/recent students) identifying 10 themes reflecting their mental health experiences at university through reflective discussions, enabling autistic people to lead research and address power imbalances inherent in autism research. They presented these themes at a webinar, attended by over 200 staff from UK universities, providing a platform for autistic students to influence practice. Ten themes identified in line with experiences of the triggers and risk factors for mental health at university were; Routine, living independently, reasonable adjustments, group work, sensory issues, attendance and a range of learning options, disclosing diagnosis, social issues, burnout and seeing the bigger picture. We discussed the support that we found to be useful and developed recommendations for universities to support the positive well-being of autistic students. We outline the need for universities to co-produce services and support with autistic students.

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Details

Published: Jan 01, 2025
Vol/Issue: 3
License: View

Authors

E

Ellie Horton

Department of Psychology, University of Warwick, Coventry, UK

L

Laura Brownhill

Department of History, University of Wolverhampton, Wolverhampton, UK

A

Alice Bycroft

Department of Data Science, University of Wolverhampton, Wolverhampton, UK

A

Anita Z. Goldschmied

Nursing and Midwifery, Sheffield Hallam University, Sheffield, UK

M

Max J. Knops

Simons Initiative for the Developing Brain, Centre for Discovery Brain Sciences, University of Edinburgh, Edinburgh, UK

A

Anthony Lloyd

Medical School, University of Birmingham, Birmingham, UK

D

Daniel Tones

Department of Psychology, University of Warwick, Coventry, UK. Beth Wiltshire, Warwick Mathematics Institute, University of Warwick, Coventry, UK

B

Beth Wiltshire

University of Warwick, Coventry, UK

C

Carla T Toro

Warwick Medical School, University of Warwick, Coventry, UK

J

Jagjeet Jutley-Neilson

Department of Psychology, University of Warwick, Coventry, UK

Cite This Article

Ellie Horton, Laura Brownhill, Alice Bycroft, et al. (2025). In our own words: Using participatory dialogue to reflect on the mental health experiences of autistic students in university. Neurodiversity, 3. https://doi.org/10.1177/27546330241310372

In our own words: Using participatory dialogue to reflect on the mental health experiences of autistic students in university

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