journal article
Dec 01, 2007
Long-Term Outcome Following Traumatic Brain Injury
Abstract
AbstractObjectives: To investigate care needs, functional outcome, role participation and community integration approximately nine years following severe brain injury. To gain an understanding of the ongoing cost of care and support needs for this group. Participants: 13 individuals who had sustained an extremely severe traumatic brain injury (TBI), between 8 and 9 years previously participated in the study. These individuals were the remaining participants of a larger sample of consecutive admissions between 1996 and 1998 at Ivanhoe Manor Rehabilitation Hospital. Measures: Structured Interview, Functional Independence Measure, Community Integration Questionnaire, Care and Needs Scale and Role Checklist. Results: The majority of the participants were reported to have high support needs, with 6 participants (46%) requiring 24-hour support. Four participants were reported to able to be left alone for between a few hours per day to almost all week. Three participants reported that they were completely independent. The participant's characteristics are described in terms of functional independence, community integration and role participation. Overall care needs appear to have remained relatively stable between 2 and 9 years postinjury. However, there was a shift in the proportion of paid and gratuitous care over time, with a decrease in paid care and increased gratuitous care noted from the 2-year to long-term follow-up time points. Conclusions: Severe TBI has a long term influence on life roles, care needs and functional independence. The current study suggests that high care needs do not necessarily preclude participants from leading active lives and participating in valued life roles. The importance of social support in facilitating participation in activity and the potential issues for caregiver burden, given the increase in gratuitous care over time, should be acknowledged and further research in this area is recommended.
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References
45
[1]
Ashley M.J. Journal of Rehabilitation Outcomes Measurement (1997)
[2]
Barris, R., Oakley, F. & Kielhofner, G. (1988). The role checklist. In B.J. Hemphill (Ed.), Mental health assessment in occupational therapy. New Jersey: Nelson, Slack Inc.
[4]
Brzuzy S. Journal of Head Trauma Rehabilitation (1996) 10.1097/00001199-199606000-00011
[6]
Burleigh S.A. American Journal of Occupational Therapy (1997) 10.5014/ajot.52.1.45
[7]
Callaway, L., Sloan, S. & Winkler, D. (2005). Enabling people to maintain and develop friendships following severe traumatic brain injury. Australian Occupational Therapy Journal, 292-295.
[9]
Colantonio A. Disability and Rehabilitation: An International Multidisciplinary Journal (2004) 10.1080/09638280310001639722
[10]
Corrigan J.D. Journal of Head Trauma Rehabilitation (1995) 10.1097/00001199-199508000-00005
[11]
Curtiss G. Journal of Head Trauma Rehabilitation (2000) 10.1097/00001199-200010000-00005
[13]
Doig E. Brain Injury (2001) 10.1080/02699050110034343
[19]
Huebner R.A. American Journal of Occupational Therapy (2003) 10.5014/ajot.57.2.177
[20]
Jennett, B. & Teasdale, G. (1981). Management of Head Injuries. Philadelipha: Davis.
[23]
Oddy M. Journal of Neurology, Neurosurgery and Psychiatry (1985) 10.1136/jnnp.48.6.564
[26]
Perlesz A. Journal of Head Trauma Rehabilitation (2000) 10.1097/00001199-200006000-00005
[27]
Ponsford, J.L. (2003, April). Outcome 10 years following traumatic brain injury. Paper presented at the 26th Annual Brain Impairment Conference, Sydney, Australia.
[29]
Rappaport M. Archives of Physical Medicine and Rehabilitation (1982)
[30]
Rees, R. (2005). Interrupted lives: Rehabilitation and learning following brain injury. East Hawthorn, Victoria: IP Communications.
[31]
Sander, A.M., Kreutzer, J.S., Rosenthal, M., Delmonico, R. etal (1996). A multicenter longitudinal investigation of return to work and community integration following traumatic brain injury. Journal of Head Trauma Rehabilitation Vol 11(5) Oct 1996, 70-84.
10.1097/00001199-199610000-00007
[32]
Sullivan, T. (2002). Caregiver Strain Index (CSI). New York: Hartford Institute for Geriatric Nursing, New York University.
[33]
Tate, R. (2003, April). Long term psychosocial outcome after severe traumatic brain injury: A 20-25 year follow-up. Paper presented at the 26th Annual Brain Impairment Conference, Sydney, Australia.
[36]
Thomsen I.V. Journal of Neurology, Neurosurgery and Psychiatry (1984) 10.1136/jnnp.47.3.260
[37]
Thomsen I.V. Suppl (1992)
[38]
Tooth L. Brain Injury (2001) 10.1080/02699050010013923
[39]
UDS Data Management Service. (1990). Guide for use of the Uniform Data Set for Medical Rehabilitation including the Functional Independence Measure (3rd ed.). Buffalo, NY: State University of New York at Buffalo.
[40]
Willer B. Brain Injury (1994) 10.3109/02699059409151017
[42]
Willer B. Journal of Head Trauma Rehabilitation (1993) 10.1097/00001199-199308020-00009
[43]
Winkler, D. (2002). Factors that lead to successful community integration following severe traumatic brain injury. Unpublished master's thesis, La Trobe University, Melbourne, Australia.
[44]
Winkler D. Journal of Head Trauma Rehabilitation (2006) 10.1097/00001199-200601000-00002
[45]
World Health Organization. (2001). International classification of functioning, disability, and health (ICF). Geneva: Author. Retrieved July, 2006, from www.tac.vic.gov.au
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Citations
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References
Details
- Published
- Dec 01, 2007
- Vol/Issue
- 8(3)
- Pages
- 251-261
- License
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Authors
Cite This Article
Sue Sloan, Dianne Winkler, Katie Anson (2007). Long-Term Outcome Following Traumatic Brain Injury. Brain Impairment, 8(3), 251-261. https://doi.org/10.1375/brim.8.3.251
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